The death of a six-year-old patient in an investigator-initiated study highlights systemic vulnerabilities in ethics reviews, animal-testing protocols and the financing of rare-disease treatments

The experimental gene therapy was meant to fix a rare genetic condition that caused a delay in cognitive development.

BEIJING, July 26 — A Chinese university is looking into reports that a gene-editing trial caused the death of a six-year-old girl, which was not disclosed in the published...