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Storia in 2 fonti
Decision due on HSE funding for treatment for rare genetic disorder
The drug omaveloxolone, branded as Skyclarys, was approved in the US for the treatment of the disease, followed by Europe
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2 prospettive sulla stessa storiaTimeline cronologica
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irishtimes.com
Friedreich’s ataxia: ‘We haven’t got time. We just simply need a chance’
Patients and families are calling on the HSE to fund Skyclarys, a treatment they say could help slow progression of the rare disease
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HSE agrees to fund drug for patients with Friedreich’s ataxia
Omaveloxolone, branded as Skyclarys, has been approved in US and Europe for treatment of disease
