Mariann Vegh's son Erik has Asparagine synthetase deficiency (ASNSD) - a rare, neurometabolic disease that has no treatment. Mariann and her husband refused to give up and are now the driving force behind a major research effort to find a cure.

This content was published on

June 30, 2026 - 09:00

1 minute

I am an experienced video journalist passionate about making complex topics accessible and engaging through compelling multimedia storytelling. Focused on social and environmental issues, I produce various video formats on a wide range of topics, specialising in impactful explainer videos with motion graphics and stop-motion animation.