To share your story, or find out how to get involved with CNBC Cures, email CNBC.cures@cnbc.com
In 2016, when Susannah Rosen was 2½ years old, her parents, Luke Rosen and Sally Jackson, noticed during bath time that something wasn’t right. When Sally prompted Susannah to playfully kick her legs in the water, she wasn’t able to.
“For our first kid, if it was a bee sting, we would run into the emergency room, right? But we were like, she’s our second kid, you know? She’s gonna catch up on her own ... but she didn’t catch up,” Luke said. “After we found out she couldn’t kick, we went to the hospital.”
Luke and Sally were living with their two kids in New York City. Luke had a thriving career as an actor and writer, and Sally was working as a chef’s assistant.
Luke said Susannah didn’t have great balance as a toddler and needed assistance walking, common characteristics of a child learning a new milestone. But as time went on, the gap between Susannah’s development and that of her peers started to widen.
