I’ve spent the last 25 years in front of the camera here at CNBC, and people have gotten to know a lot about me.
What they don’t know, though, is probably the most important part: My family. And our family is a happy one. But we are also unique, and we have our struggles.
Our 9-year-old daughter Kaylie, our youngest child, has a rare genetic disease. Her journey and her battles have changed me in so many ways, all for the better.
Kaylie is a beautiful, happy, loving girl. Those who know us say she’s a mini-me. But I know she’s better than I’ve ever been. She is full of light and life and love. And she works harder every day than anyone I know.
Kaylie has SYNGAP1, which means she only produces half of the SynGAP protein needed for brain development. Like the other 1,700 or so people around the globe with the same diagnosis, that means she has seizures, developmental delays and intellectual disabilities. And like most other Syngapians, she has autism. Kaylie’s autism is severe.
