A schoolboy's incurable disease was written off as dyspraxia by doctors for two years before he was diagnosed with a life-changing terminal condition.
Eddie Worman, then six, first caused concern after his mother Rachel, 39, noticed he was struggling to walk upstairs.
After two years of GP and physiotherapy appointments, Eddie's worried family finally received clarity and in April 2024 were told their son had Duchenne Muscular Dystrophy (DMD).
The debilitating neuromuscular disease leads to muscle wastage and weakness and Eddie is one of just 2,500 sufferers across the whole of the UK.
Now Eddie's family, including his sisters Maisie, 13, and Olive, 10, have launched a GoFundMe page to raise money for his ongoing care and to buy a specialised wheelchair before his condition worsens.
