A five-year-old boy who received the world's most expensive drug as a baby has made "incredible progress" and can walk independently, his mother said.
Edward, from Colchester, has spinal muscular atrophy (SMA) which means he lacks a protein vital for muscle development.
He was one of the first children in England to be given the gene therapy Zolgensma, which costs £1.79m for the one-off treatment, through the NHS in 2021.
Mother Megan said Edward was her "pride and joy" and he had achieved milestones she never thought possible.
About 65 babies are born with SMA in England each year. It causes muscle weakness and affects movement and breathing, meaning most babies do not live past the age of two without intervention.
