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Storia in 2 fonti
Why families had to protest and even litigate to get Skyclarys for Friedreich’s ataxia
But high-cost drugs can damage our health system by denying treatments to other patients
Confronto fonti
2 prospettive sulla stessa storiaTimeline cronologica
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irishtimes.com
Decision due on HSE funding for treatment for rare genetic disorder
The drug omaveloxolone, branded as Skyclarys, was approved in the US for the treatment of the disease, followed by Europe
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HSE agrees to fund drug for patients with Friedreich’s ataxia
Omaveloxolone, branded as Skyclarys, has been approved in US and Europe for treatment of disease
