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Opinion: Early access to all drugs for rare diseases is pie in sky unless we tax to fund it
The row over Skyclarys, a new drug for Friedreich’s ataxia patients, was the political story of the week
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2 prospettive sulla stessa storiaTimeline cronologica
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irishtimes.com
Decision due on HSE funding for treatment for rare genetic disorder
The drug omaveloxolone, branded as Skyclarys, was approved in the US for the treatment of the disease, followed by Europe
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The Irish Times view on drug reimbursement: lessons from the Skyclarys saga
The process of negotiating drug reimbursements is opaque and drawn-out
