HomeAI · summaries
Storia in 2 fonti
Irish patients say they were made to 'beg' for rare disease drug | Euractiv
Friedreich's ataxia campaigners welcome funding reversal on Skyclarys but warn others face the same fight
Confronto fonti
2 prospettive sulla stessa storiaTimeline cronologica
- ·
irishtimes.com
HSE agrees to fund drug for patients with Friedreich’s ataxia
Omaveloxolone, branded as Skyclarys, has been approved in US and Europe for treatment of disease
- ·
Decision due on HSE funding for treatment for rare genetic disorder
The drug omaveloxolone, branded as Skyclarys, was approved in the US for the treatment of the disease, followed by Europe
