Jump to contentThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged inAllNewsSportCultureLifestyleJesy Nelson's new Prime Video documentary, Jesy Nelson: Life Changing, follows her campaign to change UK newborn screening laws for Spinal Muscular Atrophy (SMA). Nelson's twin daughters, Ocean Jade and Story Monroe, were diagnosed with SMA, prompting her advocacy for the condition to be included in the heel prick test. The documentary features Nelson's tearful interview with former health secretary Wes Streeting, in which she questioned why SMA screening was not already a standard part of newborn testing. Nelson expressed her frustration and heartbreak over her daughters' delayed diagnosis, believing early screening could have prevented some of the devastating effects of SMA. The Department of Health announced that a national newborn screening programme for SMA will be rolled out across England from the end of this year, following an evaluation programme. In fullSMA screening: Jesy Nelson’s tearful TV encounter with Wes Streeting to be shown in new documentaryMore bulletinsThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in
Jesy Nelson’s interview with Streeting over SMA screening to be shown in documentary
Jump to contentThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged inAllNewsSportCultureLifestyleJesy Nelson's new Prime Video documentary, Jesy Nelson: Life Changing, follows her campaign to change UK newborn screening laws for Spinal Muscular Atrophy (SMA). Nelson's twin daughters, Ocean Jade and Story Monroe, were diagnosed with SMA, prompting her advocacy for the condition to be included in the heel prick test. The documentary features Nelson's tearful interview with former health secretary Wes Streeting, in which she questioned why SMA screening was not already a standard part of newborn testing. Nelson expressed her frustration and heartbreak over her daughters' delayed diagnosis, believing early screening could have prevented some of the devastating effects of SMA. The Department of Health announced that a national newborn screening programme for SMA will be rolled out across England from the end of this year, following an evaluation programme. In fullSMA screening: Jesy Nelson’s tearful TV encounter with Wes Streeting to be shown in new documentaryMore bulletinsThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in
