TVTV NewsJesy NelsonFormer Little Mix star Jesy Nelson's children Ocean and Story were diagnosed with Spinal Muscular Atrophy Type 1.14:35, 15 Jul 2026Jesy Nelson fears her children will be angry with her when they grow up because she didn't spot the signs of SMA sooner.‌The former Little Mix star's children - Ocean and Story - were diagnosed with Spinal Muscular Atrophy Type 1. With a campaign backed by The Mirror, Jesy continues to fight for kids in the UK to be tested for the condition at a much younger age.‌She was left "heartbroken and outraged" by the decision to not offer testing to every child earlier this year, but vowed to "keep on fighting" for the testing earlier this year. At present, only 72 per cent of the country will have access to newborn screening when it is introduced in October.‌Speaking in her new Prime Video documentary, Jesy Nelson: Life Changing, she said: "No one should ever have to go through this and it infuriates me that one day I'm going to have to have a conversation with them and say maybe this didn't need to be this way and they're going to have questions for me."I don't know, these are things that I have to battle with every day of like what are they going to ask when I'm older? Are they going to be mad at me that I didn't see the signs sooner and that I could have potentially given them a completely different life?"‌A tearful Jesy said she was worried people might think she was saying her kids couldn't live as full a life with their disabilities, but she was more frustrated that a simple test could have prevented all of this."That wasn't what their life should have been. And I know people keep messaging me, going, 'disabilities don't define children,' and they don't. But I will never, I can't accept that they could have been able to walk and run and live how a child should live," she said."That's the part that I will never be able to f*****g accept and that is why I'm doing everything that I can to try and change this. Because if I can stop other families from having to go through all of this s**t and hate that we have to go through, then I've done something good out of this horrendous experience."Article continues belowJesy joined forces with the Mirror to raise awareness about SMA and how it can be detected at birth. She wants SMA to be part of an NHS blood test that is normally carried out at five days old, and currently tests for 10 other conditions.Jesy Nelson: Life Changing will be shown on Prime from July 17Like this s tory? F or more of the latest showbiz news and gossip, follow Mirror Celebs on TikTok , Snapchat , Instagram , Twitter , Facebook , YouTube and Threads .Choose Daily Mirror as a 'Preferred Source' on Google News for quick access to the news you value.‌Little MixJesy Nelson