A three-year-old girl who was given paracetamol for what doctors thought was a fever is fighting for her life as it turned out to be a rare and deadly genetic illness that can only be managed with a £500,000 treatment.
Katie Hughes was rushed to hospital after having a terrifying seizure but doctors blamed the fit on a high temperature.
Her parents Grant and Jessica Hughes were reportedly sent home with painkillers and told not to worry.
Devastatingly the seizures continued and after her seventh attack her parents demanded an explanation, so the doctors ordered genetic tests despite no family history connected to her symptoms.
Katie was diagnosed with CLN2 Batten Disease - a cruel, terminal brain disorder that will slowly rob her of her ability to walk, talk and see.






