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Woman says time running out for her as HSE delays decision on Friedreich’s ataxia drug
Emily Felix has taken legal action in desperate bid to access drug that can slow disease’s progression
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irishtimes.com
Timeline cronologica
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Woman says time running out for her as HSE delays decision on Friedreich’s ataxia drug
Emily Felix has taken legal action in desperate bid to access drug that can slow disease’s progression
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Treatment for Friedreich’s ataxia should not be reimbursed by HSE, drug group recommends
Disease causes progressive damage to the nervous system with those affected having shorter life expectancy