Jesy Nelson fights to change newborn screening laws in emotional new documentary

Stay up to date with notifications from The IndependentNotifications can be managed in browser preferences.Jump to contentThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged inAllNewsSportCultureLifestyleJesy Nelson, 35, is set to release an Amazon Prime documentary titled 'Jesy Nelson: Life Changing', which follows her campaign to reform UK newborn screening laws. The documentary is driven by her personal experience after her twin daughters, Ocean Jade and Story Monroe, were diagnosed with the rare condition Spinal Muscular Atrophy (SMA). Nelson shared an emotional trailer, revealing she feels she will be 'heartbroken for the rest of my life' and stressing the daily challenges her daughters endure. She is advocating for mandatory SMA testing to be included in the newborn heel prick test, asserting that early diagnosis and treatment are vital to mitigate the condition's most severe impacts. The series, which explores Nelson's journey as a single mother adapting to her daughters' conditions, is scheduled for release on July 17. In fullJesy Nelson reveals she will be ‘heartbroken’ for the rest of her lifeMore bulletinsThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in

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