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Jesy Nelson slams ‘unfair’ SMA rollout as star heads to parliament for crucial debate
Stay up to date with notifications from The IndependentNotifications can be managed in browser preferences.Jump to contentThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged inAllNewsSportCultureLifestyleJesy Nelson has criticised the "unfair" rollout of spinal muscular atrophy (SMA) tests, likening it to a "postcode lottery". Her daughters, Ocean Jade and Story Monroe Nelson-Foster, were diagnosed with the rare genetic condition earlier this year. Nelson launched a petition for the inclusion of the SMA test, which has since gained over 150,000 signatures. The petition is scheduled for a parliamentary debate on Monday, 22 June, which Nelson will attend. She expressed concern that the current rollout would only cover 72 per cent of England, meaning some babies would not be screened based on their location. In fullJesy Nelson criticises ‘postcode lottery’ of SMA rollout ahead of key debateThank you for registeringPlease refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in
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mirror.co.uk
Jesy Nelson breaks down over twin daughters as she takes campaign to parliament
The former Little Mix star's daughters, Ocean and Story have the rare muscle-wasting condition, and on Monday she takes her campaign for mandatory testing to parliament
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dailymail.com
Jesy Nelson shares snap of her twin's SMA spinal braces
The singer, 35, revealed in January that her now one-year-old twins had been diagnosed with SMA Type 1, a rare muscle-wasting condition.
