Jesy Nelson criticises ‘postcode lottery’ of SMA rollout ahead of key debate

Jesy Nelson has blasted the “unfair” rollout of spinal muscular atrophy (SMA) tests, likening it to a “postcode lottery”. In January, the singer shared the devastating news that her daughters, Ocean Jade and Story Monroe Nelson-Foster, had been diagnosed with the rare genetic condition that may prevent them from ever walking. A petition she launched for the inclusion of the test has gained over 150,000 signatures and will be debated in parliament on Monday (22 June), which she will attend. However, in a recent Instagram post ahead of the debate, Nelson criticised the rollout, which would only cover 72% of England. “That means some babies won’t be screened simply because of where they live. A postcode lottery like that just isn’t fair.”

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