Since his wife was diagnosed with early-onset dementia in 2020, Paul Kemp has gradually seen all aspects of his normal life slip away from him.

He was forced to quit the job he loved as a manager at a tyre company to care for his wife, Sandra, when they were in their early 50s.

Having to navigate the health and social care systems with “no support”, Paul has seen first hand how broken the system is.

Crippling financial burden

“It’s an absolute nightmare. No one helps you navigate it,” Paul, 59, said. Because his wife Sandy was not assessed to be in enough need, they were not offered state social care, and private carers were prohibitively expensive.