Two weeks ago, I wrote a BBC News article about the impact of a severe and often misunderstood skin condition many people have been sharing on social media, called topical steroid withdrawal (TSW).
For some, it's a severe case of eczema. For others, it's a condition in its own right. The problem is doctors can't agree on what it is.
The article hit a nerve - millions of people read it and 240 got in touch.
So what's going on? I have now spoken to more patients and doctors about why this condition remains such an enigma.
In hospital, with her arms wrapped in bandages, Bethany Norman held onto her baby son. He had eczema but, against the advice of doctors, she was adamant he would not have steroid creams to treat it.
