Demanding that the Union Health Ministry and ICMR recognise Huntington’s disease (HD) as a rare disease in a policy amendment of the National Policy for Rare Diseases (NPRD), HD patients, their caregivers, and doctors on Saturday came together at the second HDSI international conference at NIMHANS in Bengaluru.
HD is a progressive neuropsychiatric genetic disorder that causes the malfunction or death of nerve cells in the brain. As a result, a gradual decline in physical and mental abilities over time generally occurs during one’s middle-aged years.
