By the time I got a diagnosis, I had seen four different doctors over the span of six years

My baby nephew grabbed my arm, eager to show me his toy trucks.

“Don’t ever touch me there again!” I snapped.

The confusion and hurt on his face stopped me cold. He couldn’t have known that his tiny hand had caused an intense surge of pain.

For years, I’d experienced a stabbing pain in my forearm when it was touched or exposed to cold. I don’t remember when it started, but even putting on a shirt made me wince if the fabric brushed against the area. A cold breeze could trigger agony that felt like needles pressing deep into muscle and bone.